The Rooster Digital team will be running the Stockbridge 10k to raise awareness about the rare condition of Amy Barnham, a 17 year old girl who was born with a damaged part of the brain called the corpus callosum, which causes a global development delay and a severe learning disability, as well as suffering from complex epilepsy and scoliosis. The corpus callosum is a thick band of nerve fibers that divides the cerebrum into left and right hemispheres. It connects the left and right sides of the brain allowing for communication between both hemispheres. The corpus callosum transfers motor, sensory, and cognitive information between the brain hemispheres.
Amy’s parents, Caroline and Bob Barnham, visited our offices for the team to meet Amy and get to know a little more about her daily activities:
“Amy cannot manage her own personal care such as washing, dressing or going to the toilet. Due to her scoliosis, Amy needs support or a wheelchair when walking for longer periods of time, and as she’s unsteady on her feet, Amy cannot just get up and get herself some food or drink. A daily dose of medication is administered to Amy through a tube leading into her stomach, and Caroline treats her and takes care of the equipment with no medical help.”
Bob Barnham works at a local school and shares care patterns for their daughter with his wife: Caroline will look after Amy during the week, and Bob will take over on weekends. “Caroline really plays down how much she does” says Bob Barnham. “Coupled with doctor, consultant, neurologist, O.T. and dietician appointments, Caroline ensures Amy attends school a couple of hours a week, has fun filled days and stays healthy. Due to her disability, Amy tends to have epileptic seizures during the night so Caroline will stay up to ensure Amy is safe.
We don’t tend to talk about this much at home, instead concentrate on the positives! Despite all the troubles we’re faced with in every day life, Amy is a beautiful, happy, funny and brave girl who has exceeded all expectations of her original prognosis and has battled through serious illness with a smile on her face.”
Rooster Digital contacted Caroline and Bob to discuss the opportunity for raising money and help Amy get a touchscreen computer for her 18th birthday. “Amy loves watching YouTube and old family videos. Although she cannot read or write, she remembers the words on the computer like Back, Exit, Play and so on. She enjoys spending time playing and looking through old photos.”
Chris Tyler-Smith, Marketing Director of Rooster Digital, comments: “We heard about Amy and her hard working, caring family and really wanted to get involved – not only raise donations but also awareness about Amy’s condition. So we decided to run the Stockbridge 10k as a team as we know this will be a big challenge for all of us! We hope that a touchscreen computer or tablet will help Caroline get a well deserved rest whilst Amy explores the world through a medium she is comfortable with and is happy using.
We’re hoping to raise enough funds so we’re asking everyone to give a little and come and cheer us along on the day – believe me, it’s not something you’d want to miss!”
The Stockbridge 10k will be held on 8th September. If you would like to sponsor Rooster Digital, please write your checks to Rooster Digital Ltd or drop us an email at [email protected] for more sponsorship information.